The Pediatric Cystic Fibrosis Center, located in the Pediatric and Adolescent Specialty Clinic at MU Women's and Children's Hospital, grew out of the Cystic Fibrosis Center, which began at the University of Missouri in 1972 when Dr. Giulio Barbero led a team of specialists to treat adult and pediatric cystic fibrosis (CF) patients.
Today, there are separate clinics devoted to treating adults and children. To schedule an appointment with the Pediatric Cystic Fibrosis Center, please call 573-882-6978.
Cystic Fibrosis is an inherited disease that affects the respiratory (lungs and sinuses) and digestive systems. It is caused by gene mutations that cause mucus in the body to build up and affect organs. Symptoms of the disease may range from mild to severe. The disease was first described in 1938. The sweat test was developed in 1953 by Dr. Paul di Sant’Agnese when he recognized salt loss as the cause of death in cystic fibrosis patients during a heat wave in New York City. Cystic fibrosis remains one of the most common life-shortening genetic diseases in the United States.
Enormous technologic advances have been made in both disease diagnosis and treatment over the past several decades, resulting in improved survival among patients. Medical, social and nutritional needs of patients with cystic fibrosis often change as they mature. Fertility issues and parenting also become important issues for cystic fibrosis patients. For this reason, the Cystic Fibrosis Foundation has asked that the accredited cystic fibrosis care centers develop adult-centered care sites.
Our Cystic Fibrosis Center includes:
- Nurse Specialists
- Respiratory Therapists
- Social Work
- Inpatient Care Team on 6 West
Other specialties and treatment for conditions related to cystic fibrosis exist within the MU Health Care system. These include: