Driven to Find a Diagnosis and Treatment: Toby’s CIDP Story

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Story Summary

In 2016, before he turned 45, Toby Orcutt was driving home from California when his body suddenly stopped cooperating—his numb hip flexors could no longer move his foot between the gas and brake.

Once a Marine helicopter crew chief who prided himself on near-perfect fitness-test scores, Toby had spent years pushing through muscle weakness that doctors could not explain.

Over the next two decades, his strength steadily disappeared, forcing him to abandon construction work, give up exercise and adapt again and again as each new muscle stopped working.

Now unable to walk and struggling to breathe, Toby and his wife, Chris, moved to southwest Missouri, where a referral through the VA and Paralyzed Veterans of America finally brought him to MU Health Care’s neurology clinic.

Read more to discover how Toby’s long search for answers finally began to take a new turn.

Please contact us with any questions or issues.

Eric Maze
Manager of Public Relations
MU Health Care
Office: 573-876-0708
Email: mazee@health.missouri.edu