If your baby’s head shape looks uneven or different from usual, it may be caused by a condition called craniosynostosis. At Children’s Hospital, our pediatric plastic surgeons provide expert surgical care and coordinated support to help your child grow safely and confidently.

Craniosynostosis occurs when the stretchy joints (called sutures) between your baby’s skull bones fuse together too early. When this happens, the skull cannot expand to fit your baby’s developing brain. 

Our team can offer expert guidance. At MU Health Care, our specialists are experts in diagnosing and treating craniosynostosis. We use advanced surgical techniques and a team-based approach to help your child’s brain grow and develop as it should — while giving families peace of mind every step of the way.

Symptoms and Causes of Craniosynostosis

Besides an irregular head shape, craniosynostosis can increase pressure on the brain, causing symptoms such as: 

  • Headaches
  • Irritability
  • Nausea and vomiting
  • Seizures
  • Poor vision 

Oftentimes, craniosynostosis has no clear cause, but some babies can develop the condition because of genetic mutation. When the cause is genetic, babies may be born with other conditions, such as cleft palate, hemifacial microsomia or syndactyly

Sometimes, a “flat” head shape may be caused by pressure on one side of the skull during pregnancy or after birth. This is called plagiocephaly, which is not the same as craniosynostosis. The two conditions are treated differently, so it’s important to get a diagnosis from experienced experts.

Getting Help for Craniosynostosis

Because untreated craniosynostosis can put pressure on your baby’s brain, you should get your baby checked as soon as possible. To see our team, you can get a referral from your pediatrician or reach out to our plastic surgery nurse directly.

Types of Craniosynostosis

Our team is skilled at treating the four main types of craniosynostosis, as well as multi-suture craniosynostosis and/or Kleeblattschaedel (cloverleaf skull):

  • Sagittal, which involves the suture running from front to back on the top of your baby’s head.
  • Coronal, which affects one or both of the sutures running from the top of the head (soft spot) to the sides.
  • Metopic, which involves the suture that runs from the top of the head down the center of the forehead.
  • Lambdoid, which affects one or both of the diagonal sutures on the back of your baby’s skull.

Whatever type of craniosynostosis your child has, we can offer treatment and resources to support your family.

How We Diagnose Craniosynostosis

At Children’s Hospital, your baby will be examined by our team of experts, which includes: 

  • Pediatric craniofacial surgeons: Plastic surgeons who perform reconstructive surgery of the head and face.
  • Pediatric neurosurgeons: Treat brain conditions and perform surgery for craniosynostosis alongside our pediatric plastic surgeons.
  • Pediatric neuropsychologists: Assess your child’s brain development, which can be affected by craniosynostosis.
  • Pediatric ophthalmologists: Check your baby for vision issues caused by pressure inside the skull.
  • Pediatricians: Specialize in treating babies with craniofacial anomalies.
  • Geneticists: Can diagnose conditions like Apert syndrome, a rare disorder present at birth that causes craniosynostosis.

We may also order a computed tomography (CT) scan, a special X-ray to study your baby’s skull and brain. Once we confirm a diagnosis, we’ll work with other specialists on a personalized care plan.

How We Treat Craniosynostosis

Surgery is one of the best ways to treat craniosynostosis. The timing of your child’s surgery depends on whether there is pressure in their skull that could harm their brain.

At Children’s Hospital, we offer different surgical approaches based on your child’s age, skull shape, and specific type of craniosynostosis.

Minimally Invasive Surgery for Craniosynostosis

We offer a minimally invasive procedure called strip craniectomy. During this surgery, we use a special camera (endoscopy) and instruments to remove a strip of skull bone through small incisions. We can also perform this procedure without endoscopy.

Our specialists also perform cranial vault distraction when appropriate to give the brain more space to grow. 

Afterwards, your child wears a custom-made molding helmet that helps reshape the skull. Your child may need to wear the helmet for 23 hours a day for up to one year.

Cranial Vault Remodeling

During this complex surgery, the plastic surgeon and neurosurgeon work together to remove and reshape your baby’s skull bones. The goal of cranial vault remodeling is to give your baby’s brain room to grow and correct the shape of their head. Unlike endoscopic strip craniectomy, this surgery does not require your child to wear a helmet afterwards.

Follow-Up Care for Craniosynostosis

After surgery, you’ll have follow-up visits with our team so we can monitor your child’s growth and development. Regular exams and CT scans check for early signs of potential issues. When needed, our coordinator can take advantage of other resources available in our academic health system, including:

  • Developmental pediatricians: Can assist with growth-related or behavioral concerns.
  • Social workers and neuropsychologists: Can help your child get support at school if they have developmental issues.

At MU Health Care, we have a full range of 30+ pediatric specialties to assist your family.